ME/CFS

If you have any concerns with medication or have worries about your health, post your questions here perhaps our resident Pharmacist and Doctor will be able to help you. If you have a disability and would like support and have tips with coping this is the forum for you.

ME/CFS

Postby Jules1 » Sat Feb 02, 2008 9:57 am

Hello All

I have moved this topic from the chronic pain thread. Does any one suffer from chronic fatigue syndrome? If so, do you have any hints or tips on pacing, pain relief etc.

I have suffered since 2005. I was at work on day flicking between spreadsheets when suddenly my vision went blurred and everything went dark. My colleague noticed that I'd gone white and took me to the first aid room. I was taken home and collapsed when I got in, cracking a rib on a wooden cat ornament :roll: Very painful. I didn't seem to get better and at the worst point my OH had to put me in the shower, take me to the loo and chop up my food and feed me. I couldn't stand noise or light and could only lay in bed with the curtains closed. Medication me me vomit and feel dizzy.Three months later I attempted to return to work - disaster, back to square one. It was incredibly frightening, but slight relief when it was diagnosed. At least I knew what was the matter with me.

Almost three years on I am much better than I was - still not able to return to work though and still suffer great pain. Have to plan my day around rests etc. Being virtually housebound for all this time I get incredibly anxious - this is my main problem now to overcome.

Still, looking on the bright side I can see a future now whereas before I really thought that was the end.

Artemis, I was so glad to read your comments yesterday. :bounce:
Jules1
New In Town
 
Posts: 77
Joined: Mon Nov 26, 2007 6:46 am

Re: ME/CFS

Postby blondie2 » Sat Feb 02, 2008 11:30 am

Yes I was very ill for one year as in bedbound. It took three years to get back on my feet . Have been very well now for three yrears so I guess I am one of the lucky ones. ...I have been cured. It's a very debillitating and much misunderstood illness.
User avatar
blondie2
Mafia Boss
 
Posts: 3913
Joined: Sat Dec 01, 2007 6:04 pm

Re: ME/CFS

Postby Jules1 » Thu Feb 07, 2008 7:36 am

Hi blondie2

Are you back 100% as you were? Some days I feel that I will never reach that goal. My next hurdle will be to go out on my own. Friends pop round to take me out for walks etc but I really need to get back out into society on my own steam. I think I'm afraid of feeling ill when I'm out or having a 'brain fog' episode and forget where I am. I think that once I cross this hurdle things will improve rapidly (fingers crossed). :)
Jules1
New In Town
 
Posts: 77
Joined: Mon Nov 26, 2007 6:46 am

Re: ME/CFS

Postby 2shy » Thu Feb 07, 2008 7:47 am

I was made bedbound by it nearly 10 years ago now, and it took me about 3 years to get back to any kind of normality.Its always with me though, I am usually functioning at 80-90%. I have good spells and bad spells, but it has never been as bad as it first was.

I have learned to live with it.
User avatar
2shy
New In Town
 
Posts: 30
Joined: Mon Jan 07, 2008 8:32 am

Re: ME/CFS

Postby Zawja » Mon Feb 11, 2008 5:13 pm

Yip, I've had it too....nightmare stuff.
I thought I would end up in a nursing home like an elderly patient being fed and washed.

5 years since I was diagnosed and only now do I think I'm back "my old self" again. I have been left with chronically swollen glands in my neck but that seems to be it.

Do you have the 'depression' with it??
I have a very close friend who is a homeopath and she reccommended a few different things to try and I have to say they did help me.

Hope you feel better soon.
User avatar
Zawja
New In Town
 
Posts: 36
Joined: Wed Jan 23, 2008 3:32 pm

Re: ME/CFS

Postby Jules1 » Wed Feb 13, 2008 8:41 am

Hi Zawja

I too still suffer from swollen glands - how strange. I was prescribed citalopram for depression
but want to start weaning of them soon. At the end of the day I was depressed because I had morphed from being a bubbly workaholic to a vegetable who couldn't do anything for myself. I am feeling much more positive now (only the odd blip). It's been great the last few days where the weather has been lovely and sunny and I have been able to potter in the garden.

What did your homeopath friend recommend? I found the Bach's rescue remedy pretty good.

Take care.
Jules1
New In Town
 
Posts: 77
Joined: Mon Nov 26, 2007 6:46 am

Re: ME/CFS

Postby apricot » Wed Feb 13, 2008 9:21 pm

I hope you don't mind me butting in here but I have a close relative who has been very ill with this for nearly 20 years. She is mostly bedbound with terrible pain and now her doctor says that ME is not an illness in itself, it is a symptom of an underlying condition. She is now being treated for mitochondrial dysfunction ( very little energy created in her cells) and heart failure symptoms. Chronic fatigue is a different condition to ME.
apricot
New In Town
 
Posts: 49
Joined: Mon Feb 11, 2008 12:58 am

Re: ME/CFS

Postby Jules1 » Thu Feb 14, 2008 9:43 am

Apricot - of course you're not butting in. I googled mitochondrial dysfunction and it sounds a dreadful condition. My thoughts go to your relative. I must read up some more on it.

ME/CFS fall under the same umberella - hence that was my diagnosis. I was lucky that my own GP knew of a local GP who specialised in the condition and referred me to him. He was an absolute godsend. His own daughter suffered with it hence that why he decided to specialise. The GP runs a ME clinic along with an occupational health therapist. I finally realised that I wasn't losing my marbles.

Take care.
Jules1
New In Town
 
Posts: 77
Joined: Mon Nov 26, 2007 6:46 am

Re: ME/CFS

Postby apricot » Thu Feb 14, 2008 8:12 pm

Jules1 wrote:Apricot - of course you're not butting in. I googled mitochondrial dysfunction and it sounds a dreadful condition. My thoughts go to your relative. I must read up some more on it.

ME/CFS fall under the same umberella - hence that was my diagnosis. I was lucky that my own GP knew of a local GP who specialised in the condition and referred me to him. He was an absolute godsend. His own daughter suffered with it hence that why he decided to specialise. The GP runs a ME clinic along with an occupational health therapist. I finally realised that I wasn't losing my marbles.

Take care.


I'm glad to hear you have an understanding doctor. I know it took years and a lot of useless quacks before my sister found a doctor who did the right tests. Do you find the ME clinic a help? Some patients have complained they have been offered excercise which has made them worse.
apricot
New In Town
 
Posts: 49
Joined: Mon Feb 11, 2008 12:58 am

Re: ME/CFS

Postby Zawja » Fri Feb 15, 2008 8:56 pm

Jules1 wrote:Hi Zawja

I too still suffer from swollen glands - how strange. I was prescribed citalopram for depression
but want to start weaning of them soon. At the end of the day I was depressed because I had morphed from being a bubbly workaholic to a vegetable who couldn't do anything for myself. I am feeling much more positive now (only the odd blip). It's been great the last few days where the weather has been lovely and sunny and I have been able to potter in the garden.

What did your homeopath friend recommend? I found the Bach's rescue remedy pretty good.

Take care.


Hi Jules

Strange you have the glandular thing too??? They prescribed antidepressants for me too, however I never took any. Homeopath suggested stuff called Pulsitulla instead, and also Sepia which is good for mood swings. I also take another one called Rhus Tox, which is supposed to be good against viral infections (worked for me!). Echinacea boosts the immune system and Omega 3 & 6 too. These are all natural things and certainly don't do any harm. You can get them in any good pharmacy or somewhere like Holland and Barret.
For a long time I felt like a pin cushion with all the blood tests and other things they did to me. I luckily enough had a good GP who was very understanding. Been ages since I had to see the doc.
I certainly agree about the sunny weather, I even bought a light box and some 'sunlight' light bulbs :lol:
Just remembered, Belladonna can be good for the aches and pains.
Crumbs...what a rambler I am!!

Take care x
User avatar
Zawja
New In Town
 
Posts: 36
Joined: Wed Jan 23, 2008 3:32 pm


Return to The Health Spa & Disability Forum

Who is online

Users browsing this forum: No registered users and 1 guest
cron